{"id":1906,"date":"2026-02-02T13:47:27","date_gmt":"2026-02-02T13:47:27","guid":{"rendered":"https:\/\/bridges4health.pt\/?post_type=evento&#038;p=1906"},"modified":"2026-06-02T13:36:37","modified_gmt":"2026-06-02T13:36:37","slug":"dia-doencas-raras-2026-papel-central-doentes-investigacao","status":"publish","type":"evento","link":"https:\/\/bridges4health.pt\/pt\/eventos\/dia-doencas-raras-2026-papel-central-doentes-investigacao\/","title":{"rendered":"Dia das Doen\u00e7as Raras 2026: O papel central dos doentes na investiga\u00e7\u00e3o"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">No \u00e2mbito das comemora\u00e7\u00f5es do Dia das Doen\u00e7as Raras 2026, o i3S promoveu, no dia 27 e fevereiro, uma tarde comemorativa dedicada ao papel central dos doentes na investiga\u00e7\u00e3o, refor\u00e7ando a import\u00e2ncia do envolvimento ativo das comunidades de doentes e das suas associa\u00e7\u00f5es no processo cient\u00edfico. Esta iniciativa, \u00e0 qual o projeto Bridges4Health se associou, teve como objetivo criar um espa\u00e7o de encontro e di\u00e1logo entre investigadores, doentes e associa\u00e7\u00f5es de doentes, dando visibilidade ao trabalho que \u00e9 desenvolvido no i3S nesta \u00e1rea e que, apesar do seu impacto, permanece ainda pouco conhecido.<\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-2 is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img fetchpriority=\"high\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"2350\" src=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6398_02-1024x768.jpg\" alt=\"\" class=\"wp-image-2350\" srcset=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6398_02-1024x768.jpg 1024w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6398_02-300x225.jpg 300w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6398_02-768x576.jpg 768w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6398_02-1536x1152.jpg 1536w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6398_02.jpg 1600w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"2351\" src=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6428_02-1024x768.jpg\" alt=\"\" class=\"wp-image-2351\" srcset=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6428_02-1024x768.jpg 1024w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6428_02-300x225.jpg 300w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6428_02-768x576.jpg 768w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6428_02-1536x1152.jpg 1536w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6428_02.jpg 1600w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"2352\" src=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6427_02-1024x768.jpg\" alt=\"\" class=\"wp-image-2352\" srcset=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6427_02-1024x768.jpg 1024w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6427_02-300x225.jpg 300w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6427_02-768x576.jpg 768w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6427_02-1536x1152.jpg 1536w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6427_02.jpg 1600w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"2349\" src=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6404_02-1024x768.jpg\" alt=\"\" class=\"wp-image-2349\" srcset=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6404_02-1024x768.jpg 1024w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6404_02-300x225.jpg 300w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6404_02-768x576.jpg 768w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6404_02-1536x1152.jpg 1536w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6404_02.jpg 1600w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">O evento foi estruturado como um momento de partilha e reflex\u00e3o com a organiza\u00e7\u00e3o de mesas de conversa, din\u00e2micas interativas e momentos de di\u00e1logo entre ci\u00eancia e sociedade com vista a evidenciar a mais-valia do envolvimento dos doentes e das suas associa\u00e7\u00f5es na investiga\u00e7\u00e3o cient\u00edfica.<\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-2 is-cropped wp-block-gallery-2 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"576\" data-id=\"2353\" src=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6452_02-1024x576.jpg\" alt=\"\" class=\"wp-image-2353\" srcset=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6452_02-1024x576.jpg 1024w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6452_02-300x169.jpg 300w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6452_02-768x432.jpg 768w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6452_02-1536x864.jpg 1536w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6452_02.jpg 1600w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"576\" data-id=\"2348\" src=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6507_02-1024x576.jpg\" alt=\"\" class=\"wp-image-2348\" srcset=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6507_02-1024x576.jpg 1024w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6507_02-300x169.jpg 300w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6507_02-768x432.jpg 768w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6507_02-1536x864.jpg 1536w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6507_02.jpg 1600w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"576\" data-id=\"2347\" src=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6680_02-1024x576.jpg\" alt=\"\" class=\"wp-image-2347\" srcset=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6680_02-1024x576.jpg 1024w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6680_02-300x169.jpg 300w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6680_02-768x432.jpg 768w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6680_02-1536x864.jpg 1536w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6680_02.jpg 1600w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"576\" data-id=\"2345\" src=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6891_02-1024x576.jpg\" alt=\"\" class=\"wp-image-2345\" srcset=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6891_02-1024x576.jpg 1024w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6891_02-300x169.jpg 300w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6891_02-768x432.jpg 768w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6891_02-1536x864.jpg 1536w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6891_02.jpg 1600w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"576\" data-id=\"2346\" src=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6809_02-1024x576.jpg\" alt=\"\" class=\"wp-image-2346\" srcset=\"https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6809_02-1024x576.jpg 1024w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6809_02-300x169.jpg 300w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6809_02-768x432.jpg 768w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6809_02-1536x864.jpg 1536w, https:\/\/bridges4health.pt\/wp-content\/uploads\/2026\/02\/B4H_Website_IMG_6809_02.jpg 1600w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>P\u00fablico-alvo:<\/strong> Doentes e representantes de associa\u00e7\u00f5es de doentes, Investigadores e investigadoras do i3S, Profissionais de Sa\u00fade.<\/p>\n\n\n\n<div class=\"wp-block-group is-nowrap is-layout-flex wp-container-core-group-is-layout-67bb2c04 wp-block-group-is-layout-flex\" style=\"padding-top:0;padding-right:0;padding-bottom:0;padding-left:0\">\n<p class=\"has-text-align-center has-palette-color-4-color has-palette-color-5-background-color has-text-color has-background has-link-color has-small-font-size wp-elements-5b8910b0869868ae649f06ffc558a6d3 wp-block-paragraph\" style=\"border-top-left-radius:500px;border-top-right-radius:500px;border-bottom-left-radius:500px;border-bottom-right-radius:500px;padding-top:var(--wp--preset--spacing--30);padding-right:var(--wp--preset--spacing--50);padding-bottom:var(--wp--preset--spacing--30);padding-left:var(--wp--preset--spacing--50)\"><strong><\/strong><\/p>\n\n\n\n<p class=\"has-text-align-center has-palette-color-4-color has-palette-color-5-background-color has-text-color has-background has-link-color has-small-font-size wp-elements-1e9aded3e758f04480f97fd921b99a7c wp-block-paragraph\" style=\"border-top-left-radius:500px;border-top-right-radius:500px;border-bottom-left-radius:500px;border-bottom-right-radius:500px;padding-top:var(--wp--preset--spacing--30);padding-right:var(--wp--preset--spacing--50);padding-bottom:var(--wp--preset--spacing--30);padding-left:var(--wp--preset--spacing--50)\"><strong><\/strong><\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>No \u00e2mbito das comemora\u00e7\u00f5es do Dia das Doen\u00e7as Raras 2026, o i3S promoveu, no dia 27 e fevereiro, uma tarde comemorativa dedicada ao papel central dos doentes na investiga\u00e7\u00e3o, refor\u00e7ando a import\u00e2ncia do envolvimento ativo das comunidades de doentes e das suas associa\u00e7\u00f5es no processo cient\u00edfico. Esta iniciativa, \u00e0 qual o projeto Bridges4Health se associou, [&hellip;]<\/p>\n","protected":false},"featured_media":2216,"template":"","evento_cat":[140],"class_list":["post-1906","evento","type-evento","status-publish","has-post-thumbnail","hentry","evento_cat-externo"],"blocksy_meta":[],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Dia das Doen\u00e7as Raras 2026 | Bridges4Health<\/title>\n<meta name=\"description\" content=\"Evento Dia das Doen\u00e7as Raras 2026 dedicado ao papel central dos doentes na investiga\u00e7\u00e3o em Ci\u00eancias da Vida e da Sa\u00fade.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/bridges4health.pt\/pt\/eventos\/dia-doencas-raras-2026-papel-central-doentes-investigacao\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" 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